My day had began early that Friday. My spouse, Joanne, and I arrived at 7 a.m. for my 10-year comply with up colonoscopy with Dr. Smith. Though I had referred numerous my sufferers to his group, I hadn’t labored a lot with him and even met him. Because the nurse was going by her guidelines of duties, she casually talked about that he was retiring that day and a celebration was scheduled that night.
I used to be taken into the process room on time and Half-hour later I wakened within the restoration room.
“Dr. Mieczkowski, every little thing went effectively,” Dr. Smith advised me. “I eliminated one giant polyp and some smaller ones, however none of them concern me. My workplace will let the ends in a number of days.”
I thanked him and provided greatest needs on his retirement, pondering that I might by no means see him once more. I used to be relieved ― no indicators of most cancers.
Joanne and I went house to eat lunch. Since I felt effectively, we drove to the workplace to do some paperwork. Round 2:45 p.m., I had an pressing want to make use of the toilet and handed streaks of blood. I knew this was frequent after a colonoscopy, so I didn’t inform Joanne or name the physician’s workplace. Fifteen minutes later, I felt extra urgency and made one other hurried journey to the toilet. There was extra blood ― much more blood.
“Oh shit! Rattling it,” I mentioned out loud.
I advised Joanne what was happening, and he or she requested, “Would you like me to name the EMTs? Are you feeling faint?” We determined to drive ourselves to a hospital just a few miles away. I known as the doctor’s workplace with an replace whereas we had been on our means.
Upon arrival, I used to be relieved to see that the ready room was empty. I checked in on the desk and some minutes later, a nurse opened the door. “Dr. Mieczkowski? Come on again,” she advised me.
I made it. I’m going to be all proper, I believed. I took a deep breath of reduction as Joanne and I walked by the door and had been led to my room. The nurse did the standard check-in duties, related me to the monitor monitoring my coronary heart price and blood strain, put an IV in my arm, and drew blood for testing.
“No operating fluids?” I questioned. “That’ll be as much as the physician after he sees you,” she replied. As she completed, I felt an pressing want to maneuver my bowels and requested a bedside commode. I rapidly handed a number of pints of blood, which almost stuffed the container. I had simply misplaced almost 20% of my blood quantity. I used to be shocked and knew that I used to be in bother.
“So, you’re Dr. Mieczkowski,” Dr. Woods, the ER physician, mentioned sarcastically as he walked in. Nice! Right here we go, I believed. “Yup, that’s me,” I replied, making an attempt to cut back the stress. I identified the blood within the commode, however Dr. Woods didn’t appear impressed.
Whereas taking my medical historical past and doing a short examination, he was always wanting up on the monitor, which confirmed a coronary heart price of 62 and a traditional blood strain. (Usually, an individual’s coronary heart price goes as much as compensate for blood loss.) He commented on the low coronary heart price as a sign that I used to be secure. I used to be puzzled. “Dr. Woods, I’m on a excessive dose of a beta blocker for my blood strain,” I advised him. “My coronary heart price is all the time round 50 and by no means will get above 80.” It didn’t alter his pondering. I requested whether or not he was going to begin operating IV fluids and order blood transfusions. “You look fairly secure,” he answered. “I feel we are able to maintain off for now till the labs come again. We’ll see the way it goes.”
I used to be dumbfounded. I had 40 years of expertise. If I noticed that quantity of blood loss in a 62-year-old male with coronary heart illness on aspirin ― a potent blood thinner ― I might have known as for a right away GI (gastrointestinal) seek the advice of, began IV fluids, and ordered blood to be prepared for transfusion. Sadly, he jumped to a conclusion that my bleeding couldn’t be severe since my coronary heart price was low. He was operating the present and damned if he was going to hearken to me.
I continued to move a considerable amount of blood each 20-Half-hour. For the reason that blood-filled commode had not been emptied, I used the toilet throughout the corridor. I used to be not pondering clearly at this level and failed to notice the blood loss was not being measured. I all the time ordered nurses to watch a affected person’s blood loss and urine output. I grew to become weaker and paler with every episode, and I started to fret that I used to be going to bleed out. I held again on sharing my fears with Joanne.
Courtesy of Lawrence Mieczkowski
My situation deteriorated because the hours handed within the ER. The lab outcomes documented the drop in my blood quantity. My anxiousness stage grew ― one other signal of worsening shock. I buzzed the nurse’s station and requested to have Dr. Woods come again. When he arrived, I went by my checklist of issues. I requested once more about getting blood and platelet transfusions.
“The place’s the GI seek the advice of for a repeat colonoscopy?” I requested. Dr. Woods had had sufficient of my questions. He interrupted me and mentioned, “You understand, Dr. Mieczkowski, you might have extra gray hair in your beard than me, however this isn’t my first rodeo.” My spouse and I checked out one another shocked! He went on, “I feel you’re overreacting, and I’m positive you’re anxious. Why don’t I provide you with some lorazepam to calm you down.” I used to be within the arms of a physician I didn’t know or belief, and he refused to hearken to my issues.
It was round 5:30 p.m. at this level. Then, to my shock, Dr. Smith entered my room. He requested a number of questions, peeked into the bedside commode, listened to my coronary heart and stomach and poked round a bit. I reiterated my worries and requested immediately, “Are you going to do a repeat colonoscopy now?” He paused for a protracted whereas earlier than lastly answering, “Why don’t we wait this out and do a repeat colonoscopy tomorrow morning should you’re nonetheless bleeding. I’ll admit you to the hospitalist service.”
I knew from my very own experiences that physicians all the time must weigh the professionals and cons of doing one other process versus shut statement. He needed to know {that a} GI bleed is extra severe in an older affected person with coronary heart illness on a blood thinner. What was I imagined to do now? We clearly disagreed concerning the subsequent steps, however I couldn’t plead my case any additional. He was delaying a probably lifesaving process ― one of many main causes of significant opposed occasions. I couldn’t assist however suppose that the night retirement get together influenced his choice.
Round 7 p.m., one of many hospitalists on obligation visited me. He was thorough and, in contrast to Dr. Woods, he was respectful of my expertise. He gave orders for blood and platelet transfusions, began IV fluids and admitted me to a medical unit upstairs. Since he was ending his shift, he assured me the evening shift hospitalist would examine in on me. Joanne and I had been anxious to get out of the emergency room and off the arms of Dr. Woods. I used to be relieved.
Sadly, my bleeding continued in my new room. I famous that my nurse positioned a basin in the bathroom to measure my blood loss. When she noticed the quantity, she was startled and requested if I had been experiencing that stage of blood loss all day. “Sure, they usually by no means measured the blood loss,” Joanne advised her.
The hours handed, and I misplaced observe of time. I stored asking, “The place’s the blood?” The nurse stored replying, “It’s been ordered. We’re nonetheless ready.” I used to be getting colder and fewer conscious of my environment. I drifted out and in of sleep however felt my spouse’s hand on me always. I knew she was scared. I used to be bleeding out, albeit extra slowly than an individual with a gunshot wound of their stomach.
It was round 11:30 p.m. when a way of calm began to return over me ― it was an acceptance that I’d die peacefully in mattress. So that is what it feels prefer to die, I believed. I used to be not afraid. “I’m going to die,” I mentioned in a whisper. I can’t think about how Joanne felt. My nurse received startled briefly, however she was skilled with critically sick sufferers and known as in her staff.
Inside seconds extra nurses arrived, they usually took management because the hospitalist was nowhere to be discovered. Two extra IV catheters had been positioned for fast infusion of fluids and blood to be able to hold me alive. My nurse phoned Dr. James, the on-call GI specialist and one among my associates. She gave him an replace after which handed me the telephone. “Larry, we have to do the colonoscopy now,” he advised me. “I’ll be there inside the hour.”

Courtesy of Lawrence Mieczkowski
The blood and platelets had been delivered quickly after, and inside minutes it appeared the interior bleeding was slowing because the cramping and urgency had lessened. At 1:30 a.m., the nurses wheeled me all the way down to the endoscopy suite. Dr. James arrived, and I used to be asleep inside seconds of getting the anesthetic. He used 4 titanium clips to clamp an artery bleeding from the positioning of the place the massive polyp had been eliminated. Lab testing confirmed that I had misplaced almost 50% of my blood quantity.
I used to be discharged later that Saturday morning. Sadly, the shock and blood loss had broken my coronary heart, kidneys, and affected my pondering and reminiscence. My situation worsened and after present process checks domestically and on the Mayo Clinic, I used to be identified with congestive coronary heart failure, stage III kidney failure and persistent anemia. Regardless of adjustment in medicines, I nonetheless couldn’t deal with the rigorous necessities of working towards medication and my every day life, and I used to be suggested by my PCP to cease working and pursue incapacity.
It was very tough to simply accept this advice, and I used to be very offended. I cherished my work. I had simply moved right into a newly reworked workplace and, as a result of I used to be so sick, I didn’t have six months to barter the sale of my apply ― I needed to shut my enterprise. I attempted to get a malpractice lawyer to signify me however after six rejections I used to be completed. Happily, I had good incapacity insurance coverage.
Why do physicians miss a analysis or screw up on therapy plans? What’s extra, why do too a lot of them not hearken to their sufferers ― essentially the most fundamental factor that ought to be a elementary a part of their apply?
Dr. Woods didn’t actually need to take into account my issues, however he and Dr. Smith additionally did not put all of the items of the puzzle collectively, whether or not it was due to ego, placing an excessive amount of significance on my low coronary heart price, or being distracted by a retirement get together. They each had loads of time for my analysis and may have thoughtfully weighed my worries.
Sadly, my expertise is frequent since opposed occasions happen in a reported 25% of hospital admissions. If you end up in one among these opposed occasions like I did, right here is a few recommendation that could be helpful:
1. Resist yelling on the nurse or doctor. It doesn’t assist, and you might get labeled as “a tough affected person,” which might make issues worse.
2. In case you are not being heard, get the unit’s cost nurse or supervisor concerned early within the battle since any delay could also be a life-or-death problem. As a result of sufferers are randomly assigned to a hospital-based doctor, these nurses can prepare a switch to a different doctor’s care or get different specialists concerned.
3. For those who’re very sick and at a small neighborhood hospital, it is best to take into account pushing for a switch to a bigger hospital and, if obligatory, contact the hospital’s high quality, threat administration, or medical director’s workplace. This nearly all the time ensures motion since no hospital desires to be sued.
4. Outpatient medical apply may be very totally different from hospital-based care. The previous is now quantity pushed and likewise rife with missed diagnoses, delays in therapy and unsatisfactory workplace visits. Nurse practitioners (NP) and doctor assistants (PA) have comparable outcomes as physicians, usually have extra time to spend with their sufferers and have excessive satisfaction rankings. Nonetheless, ask to schedule a go to with the doctor should you’re dissatisfied with the care of the NP or PA.
5. Bettering communication along with your supplier could also be aided by bringing one other individual with you to your appointment and having them function an advocate.

Courtesy of Lawrence Mieczkowski
6. Since computer systems are actually customary in most examination rooms, a supplier could solely spend 8-10 minutes head to head with you throughout a 20-minute appointment. Put together on your go to by studying about your downside. For instance, the Cleveland Clinic’s web site has an excellent graphic depicting which organs could also be inflicting stomach ache. Kind an inventory of your issues however hold it targeted, as, sadly, most physicians don’t have time to totally deal with a protracted checklist of points. Overview your checklist with the medical assistant and ask them to scan it into your information.
7. Main care suppliers could not take into account a analysis they don’t usually see. Requesting an ultrasound if the ache is extreme or not enhancing could save your life. If the supplier says that you just don’t want it, you may get a self-funded ultrasound for lower than $200 in lots of states. Take your issues to the workplace supervisor or a director overseeing the apply.
8. Sadly, I don’t see a return to the instances when medical doctors spent Half-hour with a affected person. Paying PCPs extra for his or her time would rapidly change the system, nevertheless it’s not going to occur. Medication has morphed into massive enterprise with trillions of {dollars} spent every year. Discovering an excellent supplier could also be a problem however there are well-trained medical doctors, NPs and PAs on the market who will hearken to you. Phrase of mouth referrals are sometimes the most effective. Evaluations of physicians on hospital web sites aren’t useful in my expertise, so try unbiased websites when potential.
9. View your first couple of visits with a brand new apply as an interview and transfer on if it’s not a match. Keep in mind, you’ll be able to all the time finish a long-standing relationship with a apply. For those who determine to divorce your supplier, ship a licensed letter to the administrator of the apply explaining why you might be leaving.
We physicians know the healthcare system is damaged. Hospital executives are overpaid. Since PCPs are paid on common $180,000 versus the $500,000 an orthopedic surgeon makes, the most effective and brightest medical college students usually pursue extremely paid specialty positions. Physicians are overbooked, overwhelmed, drained and burned out. Computerized medical information have made it worse. The tip result’s usually poor affected person outcomes. Since you’ll be able to’t change the system, it’s a must to discover ways to navigate by its waves utilizing a few of the options that I’ve made.
After my expertise, I used to be sure that I wouldn’t survive a 12 months nevertheless it’s now been over 5 years. My kidney operate and anemia have improved. I’m nonetheless dealing every day with my coronary heart failure, proscribing salt, resting for hours at a time and decreasing my actions. I used to be capable of resume {golfing}. Via my physicians’ assist and the love and tender care of my spouse and others, I’ve accepted what occurred to me. It’s not what I had envisioned a decade in the past, however I’ve high quality of life. Ultimately, I survived, however I got here too near dying that ought to have been simply prevented.
Word: Names and a few figuring out particulars have been modified to guard the privateness of people talked about on this essay.
Lawrence Mieczkowski, M.D., aka Dr. Mitch, is the creator of a collection of op-ed items selling healthcare reform printed in The Dayton Each day Information in 2008-09. He has lectured extensively on diabetes and cardiovascular matters throughout the U.S., Canada, and the decrease Gulf international locations of Qatar, Oman, Kuwait, and the UAE. He continues to write down his memoir of residing with PTSD since childhood.
Do you’ve got a compelling private story you’d prefer to see printed on HuffPost? Find out what we’re searching for right here and ship us a pitch.